PROBLEM STATEMENT

The current state of digital health is plagued by several challenges that affect patients, professionals, and policymakers:

Patient/Citizen Issues

•     Limited access to health data, limited transferability.
•     Lack of preventive and proactive measures due to limited access to tools and data.
•     Current system designs jeopardize patient safety.
•     Lack of trust in service providers, hindering the use of digital services and digital therapeutics.
•     The gender gap in health data, developments, and treatments leads to inaccurate AI systems and mis- or under-diagnoses.

Professional/Policymaker Issues

•     Lack of uniformity in data acquisition, clinical calculations, guideline adoption and reporting.
•     Ineffective approach, failing to deliver quality technology.
•     Lack of end-to-end integrity and seamless cross-border use of current systems.
•     Inefficient resource planning and resource usage cause staffing shortages and burnout among professionals.
•     Dissatisfaction with current technology solutions due to complexity, lack of control, and bureaucratic inefficiencies.
•     Users are insufficiently considered as stakeholders.

Policymaker Issues

•     Digital innovations benefit only a few and not society as a whole.
•     Past investments do not result in sustainable innovations and meaningful outcome improvements.

AMBITION

Our mission is to make the foundations of digital health as boring as the electricity grid or the postal service, so that it generally just works, efficiently and with a great user experience. Then, time and money can be invested in the patient-professional interaction and in building valuable new technologies that run seamlessly on top of that foundation.

Our activities foster alignment of all stakeholders, established organisations and methods, with policy makers and technologists, ultimately driving cultural change across the digital health sector.

We provide guidance, education and training, we refine governance, standards, business models, data schema, software guidelines and information organization models, and we propose a managed investment fund to accelerate their implementation.

To economically and technologicaly sustain the ecosystem, we nurture “custodians”, organisations that create and drive information management solutions for a community of stakeholders.

Thus, we will act as a care taker overseeing and guiding stakeholders in collaborative efforts to enable digital health.

BENEFITS OF ACHIEVING OUR AMBITION

Patients/citizens/society

    Innovations that benefit all individuals, not just a few; citizens feel empowered and in control of their health; healthcare becomes more efficient and sustainable. 

Health professionals

    Solutions that reduce administrative burden and allowing more time for patient interaction; Easy-to-use technology tools that enhance the healthcare experience. 

IT industry

    Investing in a stable and reproducible framework with clear standards reduces market variations and simplifies market adoption. 

Small & Medium-sized Enterprises

    A more level playing field in an open market. 

Insurers

    Continuous, high-quality data streams for improving insurance policies. 

Overall

    Environmental, social, and governance (ESG) improvements and progress toward the digital responsibility goals. 

WHY WE CAN IMPROVE THIS

Experience

    Founding board and leadership team with demonstrable experience in successful projects and with a broad and relevant stakeholder network. 

Collaboration

    Striving for organized cooperation and co-creation, building on existing work, to achieve human-scale digital health. 

Commons

    Development of digital health in the common interest, not-for-profit, with an open license, ensuring fairness, sustainability, and safety. 

Context

    Favorable timing with mature digital technology and a pressing need for a viable alternative to the current market reality, with increasing pressures on the health systems. 

Connections

    Recognition and broad networks in digital health, open source, policy, and medical domains for effective collaboration. 

Policy

    Alignment with open approaches in European policies, challenging lock-in software and service models. 

STRENGTHS & DIFFERENTIATORS

Not-for-profit and open

    A lightweight, independent, not-for-profit association, setup for the public common good and for digital sovereignty. 

Foundation core

    Focus on effective collaboration between all stakholders to deliver greater value across the digital health value chain. 

Consumer alignment

    Prioritizing the consumer of digital assets to ensure safe and compliant solutions, for patients and professionals. 

Reuse of existing standards

    Maximizing existing digital and clinical standards to respond quickly to customer needs. 

TIMELINE & EXECUTION