Publications

A coherent, practical case for an open, sustainable digital health ecosystem, designed to be read in order.

This library sets out a practical case for an open, sustainable digital health ecosystem. It combines foundational framing with operational playbooks, investment logic and governance guidance, and it explains what is broken, what must change, and how organisations can act without reinventing standards, platforms or institutions.

Read it in order. The first documents establish shared understanding. The later ones provide the tools to govern, fund, implement and sustain change.

The library

Foundational documents first. These establish the shared framing used throughout.

Foundational 01

Defining the Open Digital Health Commons

Bert Verdonck, Jaana Sinipuro and Stuart Mackintosh

Establishes what the Digital Health Commons is, why open source alone is insufficient, and how shared governance and stewardship enable sustainable, trustworthy digital health.

commons; governance; stewardship

24 October 2025 · PDF, 1.6 MB

Download
Diagnosis 02

The Digital Health Landscape: what is broken and why

Hanna Pohjonen and David Jobling

Diagnoses systemic failures in digital health, including fragmentation, lock-in and weak governance, explaining why well-funded initiatives repeatedly fail to deliver lasting value.

fragmentation; lock-in; procurement; governance

10 April 2026 · PDF, 160 KB

Download
The missing layer 03

The Role of the Custodians

David Jobling

Introduces custodians as the missing organisational layer, showing how accountable, locally grounded stewardship sustains open systems, standards and public value over time.

custodians; stewardship; capacity; sustainability

2 May 2026 · PDF, 2.3 MB

Download
Video

EHRCON24: the video library

Eleven clinicians, architects and implementers

Eleven conversations recorded at EHRCON24 with the people who have spent careers on open health records: what is broken, why, and what they have already built in response. No paywall and no sign-up.

openEHR; interoperability; implementation; clinical leadership

November 2024

Watch the series →
The founding statement

Outline thesis

Written in Spring 2023, this is the argument the Forum was founded on: the problem stated by stakeholder group, the ambition, the case for custodians, and the route from launch to systemic change. It predates the library above and is kept as the record of where the work started.

Read the thesis →
More documents are in preparation, including operational playbooks and governance guidance. If you would like to be told when they appear, subscribe to updates, or get involved and contribute to one.